Children's Hospice Week
Friday 08 May 2015
Children’s Hospice Week
This year’s Children’s Hospice Week, a campaign organised by Together for Short Lives to support children with life limiting illnesses, takes place from 11 to 17 May.
This year Children’s Hospice Week aims to:
- Raise awareness of what life is like for families caring for children with life limiting and life threatening conditions
- Improve public understanding of the range of services available to support families
- Raise money for children’s palliative care services.
The theme is Making Every Moment Count, focussing on how precious time is for families by capturing moments in time. Together for Short Lives are encouraging people to share the moments that matter to them on social media throughout the week by posting pictures, videos and comments on Twitter and Facebook, using #momentscount.
In the UK it is estimated that there are 55,000 young adults living with a life limiting or life threatening condition in England, of which almost 13,000 are in the 18-25 year old age group*. At The Shakespeare Hospice our Young People’s Services include Transitional Care, aiming to provide a seamless transition for this age group from children’s to adult services.
The young people we support may have conditions and illnesses such as Duchene Muscular Dystrophy, Cancer, cardiac conditions or rare diseases. Some of them may eventually require palliative care, which the service can also provide. We want to help them make every moment count, and one of the aims of the service is to support each individual to achieve their maximum potential in terms of education, work and living circumstances, and in some cases helping young people to find a job and manage budgets.
The service also supports siblings and families, giving them the chance to have more moments together, whether shopping, relaxing or going out to a restaurant.
Find out more about our Transitional Care Service here.
*Source: Fraser L, et al (2013). Prevalence of life-limiting and life-threatening conditions in young adults in England 2000-2010